Happy Valentine's Day!
Jojo got some cards and balloons today. His caregiver came so I got to take a little break. Now, Jojo is just waiting for his Daddy to come home.
Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
Jojo at 6 mos. old
I miss the smile ;(
Living with Spinal Muscular Atrophy
This is a snap shot of our life with Spinal Muscular Atrophy. After we found out that our son Joseph (Jojo) had SMA, we grieved. We grieved for all the motor milestones that he would never meet, and for the life that we dreamed and visualized for him. It is tragic to see our child not being able to move much, and then to watch as he progressively loses even those minimal movements and skills that he was born with. But we learn to adjust and keep the focus away from our grief. Because really, he is not fundamentally different from kids his own age: he learns stuff, he knows what he wants, he rationalizes, he whines and occasionally throws a tantrum, and he knows how to wrap his Mom and especially his Dad around his little finger.
Jojo at 6 mos. old
I miss the smile ;(
Followers
Blog Archive
-
▼
2009
(97)
-
▼
February
(11)
- Productive Day
- Jojo's Mardi Gras
- Jojo's Artwork and Lola
- Good night Daddy
- Thursday is my favorite day of the week because th...
- I had to work today, so Jojo spent part of the day...
- Austin and Jojo: Brothers for Life
- Jojo's Big Brother
- Happy Valentine's Day!Jojo got some cards and ball...
- Typical Friday
- Initial post here. Our son, Jojo turned 5 last Dec...
-
▼
February
(11)
Powered by Blogger.
I read your message on SMA space about eating, Sky eats everything we do, but the really solid things I put in a munshkin feeder http://www.munchkin.com/products/detail.html?section=prodCategories&pID=37 copy and paste the link to see them, but Skylar can still swallow, Im just chicken about giving him soids. these might work for Jojo only you would know. Hugs Sheila
ReplyDelete