Just Jojo and Mommy today. How do you keep a 5-y/o amused? Well, since I am a little bit under the weather, Jojo gets to watch cartoons and satisfy his need for speed outside and inside the house.
I hope you get feeling better soon. I love the video's! I can't wait till Brynlee gets her chair, but by the looks of it we need to get hardwood, lol! Tell Jojo hi from us.
This is a snap shot of our life with Spinal Muscular Atrophy. After we found out that our son Joseph (Jojo) had SMA, we grieved. We grieved for all the motor milestones that he would never meet, and for the life that we dreamed and visualized for him. It is tragic to see our child not being able to move much, and then to watch as he progressively loses even those minimal movements and skills that he was born with. But we learn to adjust and keep the focus away from our grief. Because really, he is not fundamentally different from kids his own age: he learns stuff, he knows what he wants, he rationalizes, he whines and occasionally throws a tantrum, and he knows how to wrap his Mom and especially his Dad around his little finger.
oh my gosh those glasses are just too funny!!!!
ReplyDeleteI hope you get feeling better soon. I love the video's! I can't wait till Brynlee gets her chair, but by the looks of it we need to get hardwood, lol! Tell Jojo hi from us.
ReplyDelete