We Shall Overcome (Of course)

Joseph met his villain.

But the villain and its henchmen were quickly defeated.

If only Mommy/Daddy's villains were defeated that easily. Villains come in many forms. In our case, they are all the negative feelings of sadness, fear, and at times, anger, that assault us when we are reminded of just how horrible and cruel Spinal Muscular Atrophy is.

The villain sometimes catches us off-guard when Joseph asks us questions like:

"When I'm older and my muscles are working, can I play dodge ball?" or

"Why does my leg have to hurt?"

We don't have a straight answer to the first question, but had a pretty good idea about the second one. Expecting words like "osteoporosis" and "hip subluxation" did not make it easier to read the x-ray report re: Joseph's hips. But reading the report was a bit easier than actually looking at the x-ray films. It hurt me a lot to see just how bad Joseph's hips and bones are. It reminded me that as much as we try to put SMA to the side and try to live our "normal" lives, the ill-effects of SMA just keep on. So for a moment, I let my villains overpower me. Tears were shed. Endless moments of just staring at Joseph. And then, back to our "normal." Anyway, there are plant nurseries to go to,

plants/flowers to be planted,

and there's a little boy who needs help to play games on the computer and who dreams that he will become a rock star/pop star and get married when he is a grown-up.