Drew saw the pictures and wanted to know, "Where is the snow?" When I explained that you live where it is warm all year--no snow--he decided he would like to come and live with you:)
This is a snap shot of our life with Spinal Muscular Atrophy. After we found out that our son Joseph (Jojo) had SMA, we grieved. We grieved for all the motor milestones that he would never meet, and for the life that we dreamed and visualized for him. It is tragic to see our child not being able to move much, and then to watch as he progressively loses even those minimal movements and skills that he was born with. But we learn to adjust and keep the focus away from our grief. Because really, he is not fundamentally different from kids his own age: he learns stuff, he knows what he wants, he rationalizes, he whines and occasionally throws a tantrum, and he knows how to wrap his Mom and especially his Dad around his little finger.
A Christmas parade, fun. Love seeing you with Santa.
ReplyDeleteBeautiful!what a sight to see, Christmas is really coming too fast.
ReplyDeletefun fun fun, we missed our parade this past weekend, our weather was nasty!
ReplyDeleteDrew saw the pictures and wanted to know, "Where is the snow?" When I explained that you live where it is warm all year--no snow--he decided he would like to come and live with you:)
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