Oh Jojo your videos have made my night, tell me did your mama eat that egg? Great experiments, Im going to that web page and Sky and I will be working on science this week (too fun)
Drew says, thanks for the link. His nanny only works Wednesday through Friday so they'll be checking it out later this week. Personally, I love the word "easy!"
This is a snap shot of our life with Spinal Muscular Atrophy. After we found out that our son Joseph (Jojo) had SMA, we grieved. We grieved for all the motor milestones that he would never meet, and for the life that we dreamed and visualized for him. It is tragic to see our child not being able to move much, and then to watch as he progressively loses even those minimal movements and skills that he was born with. But we learn to adjust and keep the focus away from our grief. Because really, he is not fundamentally different from kids his own age: he learns stuff, he knows what he wants, he rationalizes, he whines and occasionally throws a tantrum, and he knows how to wrap his Mom and especially his Dad around his little finger.
Joseph I am loving watching you do science experiments. We are going to have to check out that website.
ReplyDeleteOh Jojo your videos have made my night, tell me did your mama eat that egg? Great experiments, Im going to that web page and Sky and I will be working on science this week (too fun)
ReplyDeleteDrew says, thanks for the link.
ReplyDeleteHis nanny only works Wednesday through Friday so they'll be checking it out later this week.
Personally, I love the word "easy!"