Ugh

Last week, Joseph caught me off guard again with this, "When I don't have SMA anymore, some people will teach me how to walk."  I think that this came about a couple of days after his Daddy and I were having a conversation about a little boy from our area who had been in a hospital in Houston for more than a month with no clear diagnosis, but now recuperating and starting to get back to walking again.  **sigh** Would that SMA be as simple as appendicitis: cut out the appendix, and you'd be all better.  I would even settle for SMA to be manageable/controllable just like diabetes.  Hey, you guys in SMA research, wasn't there supposed to be a cure for SMA in FIVE years when Joseph was first diagnosed with SMA at 11 months...Joseph will be 8 years old next week.  Please hurry up.