Brady picked the last watermelon from his garden.
Austin with his buddy Drake.
Finally got Jojo to pose with his big brother.
Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
Jojo at 6 mos. old
I miss the smile ;(
Living with Spinal Muscular Atrophy
This is a snap shot of our life with Spinal Muscular Atrophy. After we found out that our son Joseph (Jojo) had SMA, we grieved. We grieved for all the motor milestones that he would never meet, and for the life that we dreamed and visualized for him. It is tragic to see our child not being able to move much, and then to watch as he progressively loses even those minimal movements and skills that he was born with. But we learn to adjust and keep the focus away from our grief. Because really, he is not fundamentally different from kids his own age: he learns stuff, he knows what he wants, he rationalizes, he whines and occasionally throws a tantrum, and he knows how to wrap his Mom and especially his Dad around his little finger.
Jojo at 6 mos. old
I miss the smile ;(
Followers
Powered by Blogger.
Jojo it looks like you had fun outside with your computer. Happy to hear that the weather is nicer, it has cooled down here as well.
ReplyDeleteHope tomorrow is another nice day.
wonderful pictures, Jojo looks so good, and how funny is he, playing games outside, I wont show that one to Sky, because he will want to do that too. Hope your weather stays nice and you all have a great week hugs Sheila
ReplyDelete