Fireworks on January 3rd
Nice Fireworks, but it's c-c-cold.
How long before it's ready, Daddy?
I want to taste the marshmallow now.
Okay, I'll enjoy the fire first.
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Jojo at 6 mos. old
I miss the smile ;(
Living with Spinal Muscular Atrophy
This is a snap shot of our life with Spinal Muscular Atrophy. After we found out that our son Joseph (Jojo) had SMA, we grieved. We grieved for all the motor milestones that he would never meet, and for the life that we dreamed and visualized for him. It is tragic to see our child not being able to move much, and then to watch as he progressively loses even those minimal movements and skills that he was born with. But we learn to adjust and keep the focus away from our grief. Because really, he is not fundamentally different from kids his own age: he learns stuff, he knows what he wants, he rationalizes, he whines and occasionally throws a tantrum, and he knows how to wrap his Mom and especially his Dad around his little finger.
Jojo at 6 mos. old
I miss the smile ;(
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Looks like fun Joseph, yummy marshmallows
ReplyDeletebrrr it looks cold! but that fire and the fireworks look awesome
ReplyDeleteHappy New Year!!!
ReplyDeleteMay 2011 be a great year for your family!
HAPPY NEW YEAR!
ReplyDeleteccccold is right! I cant stand outside for more than few minutes before I go numb! So forget it if I ever got lost in a snow storm, or a plane crash, I would be the first meal (ok thats just sick, sorry :) Thanks for stopping by and saying hello AND for your prayers for my Dad, sweet of you. Give that sweeeet boy a big hug for me! God Bless
Heidi & Jack.