I had a tough time focusing at work today and felt very impatient with everybody with their "petty" concerns and "mundane" troubles. Didn't everybody know that today a mother was keeping a vigil on his precious boy and making a very hard decision that would rip her heart out? Didn't anybody realize how so scared I was that it would be me in the same circumstance someday? I thought of Pranav and his Mom the whole day and wished that somehow they felt the love and many hugs that were being sent their way. Many people cursed SMA on Facebook today. If only words could hurt a disease. And tonight, I count my blessings as I share another mother's broken heart. (And on SMAspace, Agustina's father wrote about her passing yesterday.) Oh Lord, have mercy on us.
Subscribe to:
Post Comments (Atom)
It's hard, isn't it, Maria - watching others because you fear your own future or because you've already been there (in some capacity, anyway) and know what the next few days, weeks, months, and years will be like for that family.
ReplyDeleteYes, if only words could hurt a disease....
'Lucy'
I remember days when I joined others in common petty and mundane complaints. Then we were blessed with Drew. Enjoying each and every day to the max--regardless of obstacles--is only one of the many ways Drew has changed our lives for the better.
ReplyDeleteIn the meantime, my heart breaks for those who are struggling with illness and even death. May God watch over them.
its so hard, and even though SMA will some day take our precious boys (and that does suck in the worst way), I just hold close to each and every day with my little man, love him as much as I can. Im so sad that so many have lost this fight, so sad. I wish I could just give you a BIG((((hug)))) its amazing to me as parents of special needs kids, how much we dont take for granted, I wish the rest of this world could learn just 5% of the compassion and love we see every day!!!!
ReplyDelete