Our weekend was very quiet and uneventful, just the way we like it. Surprisingly, Jojo chose to spend more time on the computer than watching SpongeBob Ultimate Bash on Nickelodeon. He has been staying up in his wheelchair for 6 to 8 hours a day except for "bathroom breaks." He is over the phase of getting up at 7AM to watch Special Agent Oso, but thankfully, he still goes to bed before 10PM. Lately, though, he's been whining while asleep and had to be repositioned in bed more often during the night. We're not sure if he's just not comfortable or if his nose is giving him problems. My poor baby, he always says "I'm always not comfortable." He says it's his hips. We thought that with his special mattress he'd be more comfortable. It must be the combination of him not having enough fat/padding or not enough hip joint stability because of muscle atrophy and the tendency of the joints to be subluxed/out of place that comes with SMA. We'll see how he sleeps tonight.
Showing posts with label discomfort. Show all posts
Showing posts with label discomfort. Show all posts
Sunday, July 19, 2009
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