Jojo at 2 or 3 yrs. old
At almost 4 yrs. old, he had almost outgrown the tub.
At almost 5 yrs. old, he had definitely outgrown it.
A bigger tub for the big boy
Lesson learned: When given the opportunity to build a house for a physically handicapped child (or adult), plan for the worst scenario. When we built our house, we did not think that Jojo would not be able to sit upright, or that he would eventually lose much of his motor abilities. I guess we hoped that he would stay the same way; we were in such a big denial about SMA. Anyway, he took baths in our bathtub, and as he began to grow longer we were faced with the unwanted prospect of buying a bigger tub and renovating our bathroom. We had hoped that the OCDD (state agency that assists people with disabilities) would help with the costs. They required us to submit three estimates (labor costs, materials, etc.) We finally got two estimates, but they were not good enough because they had to be very detailed as to number of nails and such. We wasted almost a year waiting for help, and decided to give up. Fortunately, one of Jojo's godmothers gave him enough money for us to purchase a bigger tub and helped with the cost of putting in the new tub along with plumbing. We've had the tub for more than six months now, and Jojo just loves it.Jojo got his head float yesterday and decided to try it on today.
Jojo you have grown so much. I love your big tub and your new head float.
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