This was about the most fall foliage we could get down here. It was not even cold that day, and by the time I took this picture, Jojo already had two mosquito bites!
During the past week or so, Jojo's O2 sat has been dipping below 94% in the afternoon. He does not act or look sick. His lungs sound clear, nose is relatively not that noisy, no fever, normal heart rate; and yet, every afternoon at around 2PM the pulse oxymeter starts beeping. So we suction, cough, suction, breathing treatment, and usually it comes back to 96 to 98%. And yet, in the back of our minds, there is that fear that maybe SMA is robbing him some more of his strength. But as I watch and listen to him vocalize/yell after his morning cough assist sessions, my fear eases up a bit. One thing you learn from living with SMA though, you can never be totally at ease and satisfied that this horrible disease has stopped its progression. And so we watch and observe him more closely. And try to live our lives as normal as possible.
Prayers that Jojo's sats will start to stay higher in the afternoon.
ReplyDeleteJunior is the same way with his cough assist, hates it and always trying to get out of it.
just a thought could it be his probe for the oxymeter? Sky does that sometimes too, and I always move it and he is back to his norm. Food for thought :) either way I hope he is good, hugs and prayers Sheila and Sky
ReplyDeleteWowee! Can't wait to show Colin this video! He loves to yell like that at the end of his cougher, too. Jojo has got him beat, though, for how long he can go!
ReplyDeleteWhat pressure do you use on the cougher?
Hope Jojo is feeling good!