Last year, our town missed out on the only snowfall of the season. And Jojo kept saying, "It's never gonna snow," way into spring of this year. But this evening...
the snow began to fall, but did not stick to the ground yet.
And it kept falling...
Jojo had enough of it.
But, one more picture with his first snowman ever.
Jojos 1st snow, how cool is that. And how strange for you guys to get snow wow. We live way up hear in the north have not had our 1st snow yet (but thats ok) Love all the pictures and videos he is so darn cute!!!!
This is a snap shot of our life with Spinal Muscular Atrophy. After we found out that our son Joseph (Jojo) had SMA, we grieved. We grieved for all the motor milestones that he would never meet, and for the life that we dreamed and visualized for him. It is tragic to see our child not being able to move much, and then to watch as he progressively loses even those minimal movements and skills that he was born with. But we learn to adjust and keep the focus away from our grief. Because really, he is not fundamentally different from kids his own age: he learns stuff, he knows what he wants, he rationalizes, he whines and occasionally throws a tantrum, and he knows how to wrap his Mom and especially his Dad around his little finger.
Jojos 1st snow, how cool is that. And how strange for you guys to get snow wow. We live way up hear in the north have not had our 1st snow yet (but thats ok) Love all the pictures and videos he is so darn cute!!!!
ReplyDeletewow how exciting, Jojo's first snow. We never get snow here. Love all the pictures and hearing Jojo talk about the snow.
ReplyDeleteLove it! Wish we could have been there to share his excitement with you guys!
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