1st Birthday (Part 1)
1st Birthday (Part 2)
2nd Birthday
3rd Birthday, with PICU nurses
4th Birthday
5th Birthday
6th Birthday
(To be posted)
Thursday, December 10, 2009
A Week From Now...
A week from now, Jojo will be six years old. That is a miracle and such a great blessing to our family, considering that Spinal Muscular Atrophy is the number 1 genetic killer of children under the age of 2. As I look back at the pictures of Jojo's past birthdays, I notice all those attributes of him that SMA took away: his head control, his ability to eat (swallow), the strength of his arms/wrists/hands, and his smile. Although the loss of these things, especially his beautiful smile, still makes me sad, I choose to focus on the one thing that matters the most: that Jojo is here with us. That I can kiss him (not on the lips) as much as I want, snuggle with him, listen to him sing or read, negotiate with him about TV shows or bedtime, etc. This year, there will be a lot of families who will be celebrating their first Christmas without their SMA angels. My husband and I will be thinking of them as we hug Jojo tight and tuck him in bed at night.
Subscribe to:
Post Comments (Atom)
Happy Birthday Jojo, hope you have a wonderful day with lots of fun.
ReplyDeleteJust brought tears to my eyes.It so hard to be happy for our little ones when so many of our kids don't make it to their first Birthday. I wish that our kiddos Birthdays didn't sound like countdowns. It warms my heart when I see kids like Jojo live past that dreaded deadline. 6 years is such a huge deal. Happy 6th Birthday Jojo. Kisses from Brynlee!
ReplyDeleteHappy Birthday Jojo, I know its going to be a great one!!! and keep em comen!!!!!! Love ya Sheila and Sky
ReplyDeleteThanks for the comment, and I just found your blog while browsing blogs. I think it's an amazing story, and I wish Jojo a happy bday, and wish you all well. :)
ReplyDeleteHappy Birthday to you, happy Birthday to you, happy Birthday Dear Jojo Jojo, happy Birthday to you!!!! we Love You an we hope tht you have the BEST Birthday today!!!! Hugs Sheila and Sky
ReplyDeleteHappy birthday, Jojo! I hope you have a wonderful day! We look forward to hearing about your day and seeing lots of pictures!
ReplyDelete